Eugene Cho

My 8-year old son is HIV+. He is not scary…and I’m prepared to fight for my son’s right to live in the light.

In my mind, I’d be writing more and simultaneously, have more time to seek out guests for my blog. Neither have worked out but having said that, I read something recently and reached out to this mom and asked her to share her story on my blog. Today’s guest post is from Jodie Howerton – a friend, neighbor, follower of Christ, and fellow parent in the larger Seattle area. Minhee and I actually shared a meal with her and her husband, Mike, last year and were immensely blessed by their words and encouragement. We also loved exchanging stories of our respective three kids.

Through our friendship, I’ve since learned that their 8-year-old son is HIV positive.

Can you imagine if that was how your child was defined – seen only through that singular narrative?

Another reason why I love respect her so much is because while it takes courage to critique…it takes a whole new level of courage, faith, and audacity…to create.

But you know what…let me stop. I’ll let Jodie share in her own words.  Even if you’re unable to visit her page, I hope you’ll take a few seconds to leave a comment and encourage Jodie, her son, and their family.

Please read her post (and watch the video) and take a moment to act as you feel convicted.

I’m prepared to fight for my son’s right to live in the light.

Several years ago, when my oldest was in 5th grade, I previewed the HIV/AIDS video that our local public school uses to fulfill state educational mandates. The video was produced in the 1980’s (might have had an update in the early 90’s), was incredibly fear based, and contained very outdated information about the virus.

I was stunned. In most other ways, I’ve been very impressed with the curriculum our school district utilizes. The video featured newspaper headlines that read, “Thousands Die of AIDS” and even spliced in a shot of the grim reaper at one point. To illustrate how HIV attacks the immune system, the video used abstract concepts related to baseball that even I, as an adult, was confused by. Then there was the personification of HIV as a red monster.

My 8-year old son, Duzi, is HIV positive.

He is not scary and he is not contagious. He takes a regimen of anti-retroviral medication every day and has an undetectable viral load. He is not a threat to anyone.

The information in the video was scary. Those without additional information would be afraid of my son after watching it. Afraid of my son – a “normal” (whatever that means!) kiddo who plays soccer, basketball, and baseball, does karate, and is a talented hip-hop dancer. Afraid of my son who is a human being that defies stereotype. He is a survivor and simultaneously, a student that loves and reads the Magic Treehouse series. Just like your kids.

The video I previewed perpetuated stigma, the terrible stigma that still criminalizes HIV positive individuals, even when they adhere to their medication and have an undetectable viral load. The chances of transmission are seriously almost moot (if you consider 1 in a million via sexual intercourse moot, even less if blood outside of the body is involed- I TOTALLY do) when HIV viral loads get to undetectable – meaning HIV can’t be detected in the blood.

Back to my preview of the public school video resources:

When the video ended, my head was spinning, blood rushed to my face, and my hand shot up. Why, I demanded, was this video being shown at all? Wasn’t there something else produced in this century that we could show instead? The poor teacher showing the video was simply utilizing a resource that had been approved by our district, and by our state. I then complained to the principal and to the school nurse, who put me in contact with the Health Coordinator at the school district.

The Health Coordinator was incredibly kind and helpful. She admitted that the video was outdated and together, we searched for replacement videos – for an entire year. We found nothing appropriate for the public school setting. And I really mean nothing.

Don’t just criticize. Create.

So, I decided to make some new videos. With the collaboration of the Office of Superintendent of Public Instruction in Washington State, physicians from Seattle Children’s Hospital, and fundraising help from Seattle Children’s Hospital Foundation, I’m creating a series of four brand new video resources for 5th grade, 6th grade, middle school and high school students.

These videos will be available FREE OF CHARGE to any school district in the nation that wants them.

Utilizing a documentary format that features a “day in the life” of an HIV positive person, the videos will contain medically and scientifically accurate information and will focus on reducing the devastating social stigma still associated with the disease. Students will understand the truth about prevention and transmission, and will feel compassionate, not fearful.

Of course, given the nature of education budgets in states across our nation, there is not any funding available for these videos. We need to raise $150,000 to create all four videos. We’ve launched a fundraising campaign on Indiegogo to help us create the first video.

A collective family decision to share.

Before you go to Indiegogo, I need you to know how much thought, discussion, and prayer went in to my family’s decision to disclose Duzi’s status so openly. Up until now, we have only disclosed his positive status on an individual basis. We have never believed that HIV is something to be ashamed of. We have never communicated to Duzi that he has something to hide or be embarrassed of. Never. We have so normalized HIV in our home, that we actually rarely discuss it any more. Every morning, Duzi takes his HIV meds, I take my thyroid meds, Caleb takes his acid reflux meds, and Alex takes her iron supplement. It’s no big deal.

We started to realize sometime in the middle of last school year that more people knew about Duzi’s HIV status than we thought. Unfortunately, even though HIV status is protected under federal privacy laws, moms at the bus stop, parents at athletic events, and well-meaning people in our church like to chat about “secret” things. We realized that we were not in charge of the information people were communicating to one another about our son’s health. People that knew about Duzi’s status didn’t know that we knew that they knew and so were not coming to us directly to ask questions. We had no idea what myths were being perpetuated.

We’ve decided, with Duzi’s input, with my other kids’ input, with perspective from our community of positive families, and with counsel from friends who know us well, to disclose openly.

Secrets have much more power than truth. We desperately want Duzi to live free of the burden of secrecy and shame; I have no doubt that open disclosure will have some consequences. I have no doubt that we will encounter ignorance and prejudice But, at least we will know about it.

And, I’m prepared to fight for my son’s right to live in the light.

We have 30 days to raise money for our “Redefine Positive” campaign on Indiegogo. Would you consider contributing?

Indiegogo Campaign // Facebook Page // Twitter

536856_573529679374511_1491632652_n

Filed under:

6 Responses

  1. Shrazzi says:

    Thank you for sharing, Jodie. Duzi is fortunate to have such an amazing, loving and proactive mother. We will contribute to redefine positive, and keep your family in our prayers.

  2. Jenbunch says:

    YES! This is so exciting and SO needed. Thanks, Jodie, for paving the way and Eugene for allowing her to share the story. Awesome.

  3. Brit says:

    First, Yea for the new videos! Second, you have made me think about things. Especially this: “I have no doubt that open disclosure will have some consequences. I have no doubt that we will encounter ignorance and prejudice But, at least we will know about it.”

  4. Angela says:

    Hooray for better HIV education! That same video is a part of our curriculum. Your project can really make a difference to literally hundreds of kids a year.

  5. Patricia Boyer says:

    I am so proud of you, Jodie and of your family for stepping on the lines of education and bring the news to all of us who have had some negative and often conflicting stories about HIV. We support you and your family and your passion for the future of your dear son. I know he must be glad to be waking up in your home every day! Wow….what a mom!!!

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

stuff, connect, info

One Day’s Wages

My Instagram

As I soaked in this breathtaking sunrise this morning above the clouds, I felt compelled to pray for so my places in America and around the world that are experiencing such pain, heartache, injustice, and violence. At times, it feels so overwhelming but in prayer, I was reminded of these words from John 16:33. As we keep striving, working, hoping, preaching, loving, truthtelling, reconciling, repenting, forgiving, dismantling, peacemaking, Kingdom building...may we fix our eyes on Christ: “I have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the world.” - John 16:33 Grateful for a very full weekend of ministry and preaching in Toronto, Canada (GTA). Such a privilege to partner with @worldvisioncan @wvcollective to advocate for the most vulnerable around the world. God is so gracious. A true honor to meet and encourage local pastors, lecture at Tyndale University & Seminary (photo), and preach at Richmond Hills Community Church, Compass Point Bible Church, and New City Church. Thank you, Lord, that you use broken and imperfect people like me to speak of Your love. Today, Minhee and I dropped off our eldest child at her college. We have been thinking and praying about this day for many years. On some days, we hoped it would never come. On other days, we couldn't wait for it to come. On some days, we prayed for time to stop and other days, we prayed with anticipation. 
After an entire summer of laughing it off, it hit us...hard...this week. Seeing all of her stuff laid out on the basement floor was the catalyst to a load of emotions.

After unloading the car and taking her stuff to her new home for this year and mindful that she might never live with us again; helping sort out her stuff, saying hello to her roommates...I wasn't sure what to do or say.

A flood of thoughts rushed my mind.

Is she ready?
Have we done enough?
Have we taught her enough? 
What if this? What if that?

And so we shared what we have shared with her the moment she began to understand words: "Remember who you are. Remember WHO you belong to. Remember what you're about. God loves you so much. Please hold God's Word and His promises close and dear to your heart. We love you so much and we are so proud of you." And with that, we said goodbye. Even if she may not be thousands of miles away, this is a new chapter for her and even for us. I kept it composed. Her roommate was staring at me. I didn't want to be that father. I have street cred to uphold. Another final hug. 
And I came home.
And I wept.
Forget my street cred.
I miss her. I love her.
She will always be my little baby.

I'm no parenting guru. I just laughed as I wrote that line. No, I'm stumbling and bumbling along but I'd love to share an ephiphany I learned not that long ago. Coming to this realization was incredibly painful but simultaneously, liberating. To be honest, it was the ultimate game-changer in my understanding as a parent seeking after the heart of God.

While there are many methods, tools, philosophies, and biblical principles to parenting, there is – in my opinion – only one purpose or destination.

Our purpose as parents is to eventually…release them. Send forth. For His glory. Met a friend and fellow pastor who I haven't seen in over 20 years. In him, I saw a glimpse of my future. While only 10 years older, his kids are married and he's now a grandfather of 3. His love for his wife and family were so evident and his passion for the Gospel has not wavered. It was so good to see someone a bit older still passionately serving the Lord with such joy and faithfulness. Lord, help me to keep running the race for your Glory. Happy wife.
Happy life. - Eugenius 3:16

I still remember that time, many years ago, when Minhee was pregnant with our first child. She had left her family and friends in Korea just two years before. Her morning sickness was horrible and when she finally had an appetite, she craved her favorite Korean food from certain restaurants in her neighborhood in Seoul, Korea. I had no way of getting that food from those restaurants so I actually said, "How about a Whopper? Big Mac?" Sorry honey. Eat away. You deserve it. I don't care if it sounds mushy but sunsets are one of my love languages. Seoul, Korea was amazing but WOW...what a breathtaking welcome back sunset by Seattle. Not ready to let go of summer.

my tweets

JOIN ME ON FACEBOOK

advertisements

Blog Stats

  • 3,418,700 hits